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Post by Voltron on Aug 11, 2004 1:56:54 GMT -5
i was diagnosed w/ PM today by my neurologist. i have been suffering w/ this for the last 6 months. it was caused by loud explosion sounds at work. the worst part about it for me is that i am really sensative to noise and the ETD caused by it is driving me nuts. i almost had tubes put in but i don't think that will help. i was thinking about having that procedure done where they cut your tensor tympani muscle on the roof of your mouth. i heard that is like the only way to treat the ETD caused by PM. the jumping up and down of my palette and the clicking noises really don't bother me that much anymore because i figured out a way to control it. this was only the 3rd case he has seen in over 35 years. and my case is the only case he has ever heard of that was caused by loud noise. usually this is caused by some kind of trauma to the head that injures your brainstem. i've never had anything like that happen to me though. they will call me back soon to schedule an MRI to see what my brainstem looks like. he gave me clonazapam to try for my PM.  |
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Post by Lisa on Aug 16, 2004 19:38:17 GMT -5
Voltron, First and formost Welcome to the board.
I hope you find the support here you are looking for.
I am sorry that you have been suffering with PM for the past few months. I myself only suffer from stapedial myoclonus, and most recently discovered that it is from bone deterioration in the semi-circular canals in my middle ear, but a year ago, my doctor believed that I was suffering from ETD, becaus i was for my entire child hood unable to properly regulate pressure within my ears. I did have a miryngotomy (tubes) preformed and the pressure in my middle ears significantly decreased though, in my situation, I do believe do to the deterioration of the semi-circular canals it exasperated all the other problems.
Though to this day I do not regret having tubes put in my ears because the pressure has decreased. The other syptoms i experience has made it impossible for me to continue on my past line of employment.
I was curious if you could share how you've learned to self control the clicking noises...
Also along the lines of the clonazepam, I have tried it, as well as a few other members here on the board. and we have all had moderate success with it dispite its sedating nature.
Please keep in touch, any information you have to share or any questions are always welcome.
Take Gentle Care
Lisa
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Post by Voltron on Aug 20, 2004 9:07:45 GMT -5
Hi Lisa, I can control the clicking noises by moving my palatte to the roof of my mouth and using muscles in my throat and nose to block air from moving through. I hope the Clonazapam will help with my ETD because having tubes put in doesn't help people w/ PM from what i've read. The only way I think they can treat ETD caused by PM is to cut the muscle fibers in the Tensor Tympani.  |
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Post by Seanyboy on Oct 24, 2004 5:41:55 GMT -5
My name is Sean. I am almost 21 and a healthy guy apart from a previous over active thyroid. I have recently been suffering from these bizzare vibration/fluttering sounds in both of my ear. I believe it is a muscle spasm as i sometimes get involuntary muscle twitching of the eyelids and other parts of the body. I have seen my ENT and he said that it could be palatal Myoclonus! or the tensor tympany muscle twitching! He said the best thing to do is to accept the comdition or learn relaxation techniques. I feel really haunted and it is affecting my sleep concerntration and giving me psychological stress. does anyone know anything that i could do? It is so much different to ordinary tinnitus because in this form of tinnitus i can feel it!!! Please help as i am suffering slowly but surely!
Many thanks
Sean
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Tami
Junior Member
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Post by Tami on Mar 2, 2005 8:35:41 GMT -5
Hi Voltron
I have PM and I ahve the same symptoms as you. I was misdiagnosed, for over 10 years. I had ear tubes put in, they didn't help, and ended up having a TMJ surgery before I went to NYC and was diagnosed by a neurlogist with PM. I have the severe clicking, from the air etc. I was just diagnoses about 3 months ago, I am sure after all these years this is what I have. Like you I never had any sort of injury that I know of. The ETD drives me crazy and it has increased over the years, please keep in touch.
Thanks, tami
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Tami
Junior Member
Posts: 3
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Post by Tami on Mar 2, 2005 8:43:02 GMT -5
Hi Sean,
You can read my response to Voltron, lots of spelling errors I know but I am at work and typing really quickly... Anyway I have has PM for 10 ears and was just diagnosed, I wll keep in touch with any news I am supposed to go back to NYC to see another Dr.,Maybe he can help us
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