Neurologist -Visit #2

Lisa
Administrator

Sleep delays my life (get up, get up)

Posts: 195

Neurologist -Visit #2 Dec 11, 2003 2:21:39 GMT -5

Quote

Post by Lisa on Dec 11, 2003 2:21:39 GMT -5

Well, was back to see the neurologist on last Friday, as my Gp and i had discussed I suggested Neurontin, my Neuroligist Since has suggested and I am trying a Drug Called Toperimate. It is an anti epileptic drug. I am to start at 25mg and continue with my .25 mg of clonazapam 3x a day and weekly increase my dose of the Toperimate (Topimax) 25mg until i have reached a Total of 100mg on the Topimax and then begin slowly decreasing the Clonazepam as my body has already unfortunately become dependant on the drug, although i am not mentally dependant. At this point I am not seeing any siginficant changes, and Nor should I as I am told, just alot of severe drowsyness. The doctor has now increased my disability to the beginning of march and the Neurologist and I are now discussing the option of having an ent inject botox into the stapedius tendon asa temporary measure.

As I do some more research I will let you all know a little more about this procedure.

Thanks So much

Lisa

You're in the back seat laying down
The windows wrap around
To sound of the travel and the engine
All you hear is time stand still in travel
and feel such peace and absolute
The stillness still that doesn't end
But slowly drifts into sleep

Ricochet
Moderator

Posts: 69

Neurologist -Visit #2 Dec 11, 2003 13:26:27 GMT -5

Quote

Post by Ricochet on Dec 11, 2003 13:26:27 GMT -5

Lisa, I too had heard about Botox injection into the stapedial muscle and that it lasts about 4 months.

Doc on interenet I was emailing with was a neurologist and said he was not familiar with anyone in the Chicago area that has tried this.

Let me know if you're going to try it.
K.

Lisa Administrator Sleep delays my life (get up, get up) Posts: 195	Neurologist -Visit #2 Dec 11, 2003 22:54:22 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Lisa on Dec 11, 2003 22:54:22 GMT -5 Karen I am seriously seriously concidering it. My life is a doped up ball right now. If i come across ANY information I will let you know Lisa
	You're in the back seat laying down The windows wrap around To sound of the travel and the engine All you hear is time stand still in travel and feel such peace and absolute The stillness still that doesn't end But slowly drifts into sleep

Ricochet
Moderator

Posts: 69

Neurologist -Visit #2 Dec 12, 2003 12:43:01 GMT -5

Quote

Post by Ricochet on Dec 12, 2003 12:43:01 GMT -5

Lisa, I too had my 2nd neurologist visit today. He is also adding a new drug called Trileptal and having me go back to just .5mg of the Clonazepam 3x/day. Says the new drug also causes drowsiness!!!

He does agree that it is myoclonus. Said I should consider returning to the ENT about considering the Botox injections.
I will probably put that off til next year and see how the new meds work.

My big question to him re: botox is that how can they be certain that it is the stapedial and not the tensor tympani when injecting Botox. Guess that's a question for the ENT.

Have a good weekend.
K.

Post by Lisa on Dec 11, 2003 2:21:39 GMT -5

Post by Ricochet on Dec 11, 2003 13:26:27 GMT -5

Post by Lisa on Dec 11, 2003 22:54:22 GMT -5

Post by Ricochet on Dec 12, 2003 12:43:01 GMT -5