Boo Hoo

[Ricochet]

I've been taking the Clonazepam for 6 days and it hasn't done a thing!

Called the neurologist today to see if it should be doing something by now and they said yes it should so now they are bumping up my dosage to 1mg 3 times a day!

Going to do it slow, add a .5 at night for a week then and a .5 in the am for a week and hopefully by then it will start helping. I really don't want to up the midday dose because I can barely tolerate the .5mg in the middle of the day, makes me really sleepy. Hopefully by the time I need to go up to the third extra pill I will see him (Dec 12th)

Hope you're ok.
K.

[Lisa]

(((rico)))


I am so sorry that the clonazepam isn't doing much for you.
I do understand the drowsiness, as it is is haunting me aswell,

Please let me know how things go, I do hope you have some luck.

Are you trying living in silence at home?

That is what i do, and i find it makes a million times the difference when i do have to be exposed to sound.

I know that realisticlly this isn't a long term option, but its an option in itself.

Let me know,

I too have an appointment with the neuroligist for a second time Dec 4,

And am scheduled for a CT Scan on Jan 30th

will keep you updated.

Wishing you a safe and silent week


Lisa

[Ricochet]

Thanks Lisa,
Yes I do spend alot of time in the quiet of my computer room while my husband watches TV (too loud). I can sometimes watch TV when it's not too bad or else I'll stick an ear plug in my bad ear to keep it from popping.

It's wierd though because last night I went to a friends birthday party and it wasn't bothering me that much and there were 19 people in the room. Just a few pops. I thought it was getting a little better but tonight it's seems to be happening again more often.

I hope I don't have to actually go to the full double dose. I'm just doubling the night time dose now for about a week and then I'll double the am dose. I'm just afraid that this isn't going to work and then what?? Maybe Neurontin? Have you tried that med yet?

Good luck with the Cat Scan and let me know if they find anything. I had mentioned that to neurologist and an MRA )which is like an MRI only more like an angiogram) and he didn't seem to think that was the route to go.

I had also emailed a Dr. I found on the web about this problem and he wasn't convinced is was Myoclonus, he said it might TEXTSIMPLYTEXT be an over active acoustic reflex. I emailed him back saying Simply!!! then what do you do about that if it's so simple and he just said to follow what the neurologist said.

Keep me posted on how you are. I hope you got my direct email about that guy on EZboard (2g) Gary. Is that what you experience too? That is exactly my problem. It's just so odd.
Karen

[Lisa]

Karen,

My Doctor and I have been discussing the possibility of changing to neurontin,

He feels that it may be a drug thatcould benefit me, but, i am experiencing such excessive drowsiness from the clonazepam, I will have to slowly come off this medication as my body is already becoming dependant on it, and make a transition to Neurontin, we hope that this will help, as my disability has now been extended to March.

I will keep you all Updated.

Take Care

Lisa

[Ricochet]

I had emailed a doc on the web and he mentioned neurontin too. I think I will suggest that to neurologist. At first I was afraid of that drug and he said not to worry at all it is very safe. My only concern is how long it would take me to taper off clonazepam since it replace the Xanax I was on for 7 months! My primary physician said it would take sever months to taper off. We'll see what neuro. says.

By the way, I was permanently banned from Health Boards!!
Think it's because I posted your website but I don't really care as that board was no where near as good as EZ Board. I have gotten alot of support from EZBoard members regarding my banning.

Talk to you soon and let me know what neuro. says.
Karen

[Ricochet]

Forgot to ask you (or maybe I already did ) Has anyone ever suggested cutting the stapedial muscle?
Karen